Illustration: Daria Lada An investigation by Science and Retraction Watch has uncovered details about a clinical trial that resulted in the death of its sole patient: a 6-year-old girl with a rare …
Note: this article is a summary of a longer read available here at Science.org
A pretty shit situation and a forced hand. Risk serious side effects rewriting DNA in the brain, or get seriously mentally disabled and die from a serious but simple genetic disease.
You’re fucked both ways, might as well give it a chance. Devastating for parents and family, but it was the only option with a potential for happy ending.
I’m grateful we’re even beginning to have an option for such a treatment to be possible, and has already saved a child prior to this
A pretty shit situation and a forced hand. Risk serious side effects rewriting DNA in the brain, or get seriously mentally disabled and die from a serious but simple genetic disease.
You’re fucked both ways, might as well give it a chance. Devastating for parents and family, but it was the only option with a potential for happy ending.
I’m grateful we’re even beginning to have an option for such a treatment to be possible, and has already saved a child prior to this